IRB
No.: Pro00018136
Approval
Date: 03/06/2009 Expiration
Date: Exempt
Dear Neighbor,
The Medical Genetics
Institute at
the attitudes toward genetic testing within the Jewish community. As you may
know, genetics is
an area of medicine that is rapidly changing and genetic testing, both before
pregnancy and
during pregnancy, is becoming available for more and more diseases.
We are currently conducting a
questionnaire-based study, called “Attitudes toward Genetic
Testing in the Jewish Community” to learn more about people’s feelings towards
genetic testing
and to see if there are any changes that should be made in how people are
approached about
genetic testing. We are interested in learning the opinions of people of
Ashkenazi background
and people of Persian Jewish background, to see if there are differences in how
people of
different heritages feel about genetic testing.
We hope that you will be
willing to assist in this research by filling out a simple questionnaire.
The questionnaire should take no more than 10 minutes to complete.
To protect privacy, this
research is being done anonymously and there should be no risks to
participating. The decision to
participate or not participate will not have any effect on medical
care the participants or their family members receive at the Medical Genetics
Institute or through
any other
by the CSMC Institutional Review Board, which approves and monitors all human
research at
protected. The IRB can be reached at
(310) 423-3783 or by e-mail
(ResearchConcerns@cshs.org).
We will be contacting you by
telephone in the near future and hope to be able to meet with you
to discuss your organization’s membership participating in this study. If you have any concerns
or questions, feel free to contact Dr.
Andrew Spencer at (310) 423-9904 or by e-mail
(andrew.spencer@cshs.org)
or Dr. Leslie Raffel at (310) 423-6451 or by email
(leslie.raffel@cshs.org).
Thank you for your time and willingness to support
this research.
Leslie
J. Raffel, M.D. Andrew
H. Spencer, M.D.
Research Study Principal Investigator Research Study Co-investigator